What are your rights if you suffer with IC in the USA?
It is daunting, to be told that you have an incurable, life-long and life changing ‘rare’ condition, you'll certainly want to learn your rights. Unfortunately for all of us and whatever country you’re from, you will find often that your rights are not acknowledged until you learn and mention them, so the most significant in the case of ill health when constituting a disability in the USA is The Americans with Disabilities Act (ADA), as well as the Equal Employment Opportunity Commission (EEOC).
In law, similarly to the UK, the USA defines a disability as a physical or mental impairment that substantially limits one or more major life activity. This can include people who have a record of such an impairment, even if they do not currently have a disability. It also includes individuals who do not have a disability but are regarded as having a disability. Interstitial Cystitis is a debilitating condition; personally the impact has been life changing in every way. You can find examples of evidence that may be useful in supporting your health declaration. You can find examples of evidence that may be useful in supporting your health decleration, HERE.
The Americans with Disabilities Act (ADA) protects the rights of people with disabilities and applies to:
There may be many battles taking place around you, that does not make yours any less valid. Be fluid with expressing yourself and determined with your morals, because judgement from others is not based on fact, it is opinion. In law, it will be based on fact and of course the judges observations. It is scary to be facing strangers and allowing someone the knowledge of your pure emotion to openly judge; but the impact of your truth being justified is uplifting beyond measure to yuor mental health when you also have a life of invisible illness. Whatever approach you take, just keep your rights in mind and trust your gut.